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Our last CDC appointment

It has taken me some time to sum up my thoughts about my son’s last child development clinic appointment, which occurred about a week ago. The last time we saw the consultant was back in March where he was doing a wait and see approach, wanted to give him time to settle into his new school and environment, but the consultant gave us some ASD and profiling questionnaires for both us and his teachers. I think as usual we are at the same conclusion as last year with the NHS, we have radically different answers and results than the school. We see less of the problems, not saying there isn’t any issues, he is not a perfect child, but we do not have the level of meltdowns in our care and he definitely is having issues at school and other care settings. However, I still need to be utterly convinced ASD is the right label for my son. I don’t think the ASD conversation last week was handled sensitively by the paediatrician in front of my son and nearly caused a meltdown in the surgery itself. To be honest my son was managing to control his behaviour as long as possible with the amount of waiting around we had to do, as our CDC for our area is in the most inconvenient place and no where near us. We waited for two buses, instead of getting an expensive taxi this time, which are difficult to get hold of where I live. I know you are thinking why, but there just isn’t enough local taxi firms where we now live. One of the bus journeys was nearly an hour long, and we ended up having to arrive early for our appointment due to public transport connections, and his appointment ended up running slightly late anyway and he did his best to entertain himself in the waiting room with the toys they had. He also had a lunch time appointment, which isn’t the best time of the day as he was getting hungry and had eaten all his snacks that I packed for him on the way, but we had no other choice to accept or otherwise wait another month or so for another appointment. I have complained, a) suspected ASD diagnosis not handled sensitively in particular in regards to my son’s suspected diagnosis b) I think we have waited long enough to get an assessment in school, and this should be triggered before the half term arrives, I know I probably have unrealistic expectations in particular with regards to how the NHS operates, but NICE guidelines recommends assessments should be done within 3 months when there are any suspicions of autism c) We have a right to see the answers to the school’s questionnaires.

I am now waiting for answers to my questions.

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Relief or Cry?

The family dramas of recent months have been decreasing, in terms of managing my son’s behaviour and my own emotions towards them, but still more issues than I would like. I still do not see it as the ‘crisis’ my son’s previous school was alluding to, although some may disagree, but he has handled things better than some people may have expected from him. However, the continual changes to his school timetable are not helping, and yes, I know there are issues at school that need to be dealt with and prevented, but what to do right now?

We eventually got an appointment to see a paediatrician for a second opinion, and they have said possibly my son has mild autism that needs to be assessed and investigated further. I don’t know how to react to that, feel relief or cry? I still don’t completely know what to think… Am I annoyed that a previous childminder was possibly right? No, as she said it in a really unhelpful way as I held long term suspicions, but was reassured by other health professionals I was over worrying and I don’t see how she said anything that was supportive or helpful, but came across that I had a child that was possessed, not just having difficulty communicating some of his feelings. Still onwards or upwards, as still a long road to travel down yet.